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The Regenstrief Data Core is a central point of access for data from the Indiana Network for Patient Care (INPC) and other specialized sources. Data Core analysts assist investigators with a mission to transform data into knowledge to improve patient care and a vision to provide efficient facilitation of research questions from inception to clinical practice.
The Indiana Health Information Exchange (IHIE), one of the largest in the country, manages the INPC, which houses more than 18 million individual patients over 30 years and captures approximately two thirds of Indiana’s population. Data elements include admission and discharge data, lab reports, microbiology, pathology, radiology, cardiology, and EKG data. Regenstrief Institute has exclusive access to the research database, the INPCR, a resource nearly unparalleled for clinical research around the world.
Services Provided by Data Core (fees apply for non-feasibility requests):
Data Sources Available
The Indiana Network for Patient Care research database (INPCR) represents over 100 separate healthcare entities providing data which includes: major hospitals, health networks, and insurance providers.
When combined, the information from these institutions represent data on over 10 billion clinical observations, 951 million encounter records, and over 147 million mineable text reports. In addition to these clinic aspects, the INPCR receives data on drugs that have been prescribed to patients within its various institutions.
Per the INPC terms and conditions agreement, the Regenstrief Data Core acts as the custodian of these records and only they are allowed direct access to the identifiable patient data contained within the INPC research database. Within the structured data, the INPC has several ways to string data across years, institutions, between patients, and even with outside data sources. In addition, the Data Core can use a natural language processing tool developed by Regenstrief’s own Center for Biomedical Informatics to parse text notes from INPC and extract data elements that would not otherwise be available via structured data.
Eskenazi Health and Indiana University Health Data Warehouses
In addition to INPC data, the Regenstrief Data Core has business agreements in place with Eskenazi Health and IU Heath to access their patient data for approved research purposes, allowing access to greater variety and depth of clinical data than that which is contributed to the INPC database.
Indiana State Cancer Registry
The Regenstrief Data Core also has access to data from the Indiana State Cancer Registry at the Indiana State Department of Health (ISDH), which contains all confirmed cancer cases of malignant disease and other tumors and precancerous diseases that are diagnosed or treated in Indiana, as required by state statute (IC 16-38-2).
Need preliminary data for a grant? Request aggregate counts preparatory to research here, provided at no cost to Regenstrief and Indiana CTSI member investigators.
Have funding and ready to request data? Request your data extraction here.
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