Indiana Addiction Data Commons
To combat the opioid crisis, researchers and health care professionals must have access to information which extends beyond the electronic health record. Information on policy, criminal justice, treatment resources, environmental factors, and population demographics are just some of the elements necessary to provide a more holistic characterization of the opioid crisis in Indiana.
In order to lower the barriers to data access, the Regenstrief Institute is partnering with data providers and stakeholders around the state to create The Indiana Addiction Data Commons (IADC). The IADC will provide a more streamlined mechanism for researchers interested in obtaining both clinical and non-clinical data elements, which have largely remained in a siloed state between various organizations. The IADC will allow researchers to better understand the breadth and depth of information available and will enable easier access to information in a standardized fashion.
Data Concierge Service
The IADC will provide a long-term technical solution which will support data sharing and standardization amongst the partner data providers. While the technical architecture is under development, the IADC will enable a manual concierge service to act as an additional ‘front door’ for opioid related data requests. This service will triage requests to the appropriate data providers based on the details of the research question and will work to provide seamless handoffs and coordination amongst the various data providers.
Questions regarding the IADC can be directed to:
Daniel Hood, Program Manager/Public Health and Addictions
E: email@example.com P: 317-274-9349
Regenstrief Data Core
The Regenstrief Data Core can facilitate access to numerous data sources to support opioid related research. Data available for research includes:
Indiana Network for Patient Care
The Indiana Network for Patient Care (INPC) research database represents one of the largest health information exchanges in the country with over 100 separate healthcare entities providing data which includes: major hospitals, health networks, and insurance providers. When combined, the information from these institutions represent data on over 18 million patients in the form of 10 billion clinical observations, 951 million encounter records, and over 147 million mineable text reports. In addition to these clinic aspects, the INPCR receives data on drugs that have been prescribed to patients within its various institutions. With regards to the population, the percent of residents who have touched the INPCR has grown to approximately two thirds of Indiana’s population. Within the structured data, the INPC has several ways to string data across years, institutions, between patients, and even with outside data sources.
Eskenazi Health and Indiana University Health Data Warehouses
In addition to having access to the INPC data, the Regenstrief Data Core has business agreements in place with Eskenazi Health and IU Heath to access their patient data for approved research purposes, allowing access to greater variety and depth of clinical data than that which is contributed to the INPC database.
Through collaboration, engagement, research, and technology, The Polis Center (Polis) builds capacity, creates actionable information, and develops knowledge platforms and place-based solutions that lead to healthier and more resilient communities.
Polis curates numerous, spatially-enabled datasets about Indiana communities. These enhanced datasets provide valuable data for investigating community resilience and the social and environmental determinants of health, i.e., factors that influence health behaviors and health outcomes. Polis regularly collaborates with researchers and community partners on the application of place-based information for population health management, patient-centered decision support, community assessment and improvement planning, pre-disaster mitigation planning, and disaster management. Polis has expertise in using spatial and computing technologies to link and analyze clinical and community data in support of health research.
In addition to their large collection of geo-based community data elements, Polis develops knowledge platforms for the management, sharing, and use of data. For example, Polis offers access to SAVI (savi.org), a free resource that provides data about Central Indiana communities as well as tools to visualize and analyze the data (profiles.savi.org, assessment.savi.org, IndyVitals.org).
Indiana Business Research Center (IBRC)
Since 1925, the IBRC has been collecting, organizing and finding meaning in the social and economic characteristics of our state. Beginning in the 1970s, the center began providing computer access to its databases and by the 21st century, has developed an award-winning and state-of-the-art interactive web service called STATS Indiana (stats.indiana.edu), Indiana’s leading source for economic and demographic data. STATS Indiana offers a variety of ways to obtain and present essential economic and demographic data for cities and counties, states and the nation.
Additionally, IBRC offers data through several other collaborations:
- StatsAmerica: StatsAmerica (statsamerica.org) provides a unique and useful set of economic development tools, with support from the U.S. Economic Development Administration. Features include state, county, town and neighborhood profiles; industry and occupation clusters; and the Innovation Index.
- Hoosiers by the Numbers: Hoosiers by the Numbers (hoosierdata.in.gov) is produced in collaboration with the Research and Analysis division of the Indiana Department of Workforce Development. The site provides access to data and analysis produced by the department and unique tools to empower Indiana’s workforce in career path decisions.
- Indiana Indicators: The Indiana INdicators (indianaindicators.org) website, complete with its innovative health dashboards, provides a good picture of overall health and quality of life in Indiana and its counties. Not only does the site tell where we are now, but it also shows us goals for the future.
- Indiana Gateway for Government Units: Gateway (gateway.ifonline.org) provides taxpayers and researchers with information never before available, while also streamlining the data submission process for local government officials who must submit forms to the state. Over a dozen applications are used by hundreds of local units of government, schools, state agencies, casino operators, and others to submit financial and operational data. Data submitted includes budgets, annual financial reports, employee compensation reports, debt issuances, local development agreements, TIF district summaries, and school district collective bargaining reports, among others.
State of Indiana Management Performance Hub (MPH)
MPH is the State of Indiana’s hub for data-driven innovation and collaboration, serving as a connector of entities and sectors to enable progress on important issues facing Hoosiers. MPH offers the State of Indiana’s publicly available datasets in one convenient location (https://hub.mph.in.gov) as well as the ability to request custom datasets for use (https://www.in.gov/mph/935.htm). Currently, MPH offers datasets related to K-12, higher education, and workforce data. Requests are considered based upon the data available and the level of granularity allowed to be shared under the law. Visit data.IN.gov for more information.
Healthcare Cost and Utilization Project (HCUP)
Indiana State Department of Health has made public hospital discharge data available from 1999-2016. One of the primary utilities of this data is to review costs related to hospitalization diagnosis. Specific data elements available are hospital, payer, diagnosis code, total number of patients, total days of hospital stay, total charge and others.