To combat the opioid crisis, researchers and health care professionals need access to information beyond the electronic health record. Information on policy, criminal justice, treatment resources, environmental factors, and demographics are just some of the elements necessary to provide a more holistic characterization of the crisis in Indiana.
Regenstrief Institute partners with data providers and stakeholders around the state to lower barriers to data access through the Indiana Addiction Data Commons (IADC). The IADC provides a more streamlined mechanism for researchers interested in obtaining both clinical and non-clinical data elements, which have largely remained in the “silos” of various organizations. The IADC will help researchers better understand the breadth and depth of information available and enable easier, more standardized access.
Data Concierge Service
The IADC will provide a long-term technical solution which will support data sharing and standardization amongst the partner data providers. While the technical architecture is under development, the IADC will enable a manual concierge service to act as an additional ‘front door’ for opioid related data requests. This service will triage requests to the appropriate data providers based on the details of the research question and will work to provide seamless handoffs and coordination amongst the various data providers.
Questions regarding the IADC can be directed to:
Daniel Hood, Program Manager/Public Health and Addictions
E: firstname.lastname@example.org P: 317-274-9349
Regenstrief Data Core
The Regenstrief Data Core can facilitate access to numerous data sources to support opioid-related research, including:
Indiana Network for Patient Care
The Indiana Network for Patient Care (INPC) represents one of the largest health information exchanges in the country with data provided by more than 100 separate healthcare entities (major hospitals, health networks, and insurance providers). When combined, the information from these institutions represent data on over 14 million patients in the form of 11 billion clinical observations, 951 million encounter records, and over 147 million mineable text reports. In addition to these clinic aspects, the INPCR receives data on drugs that have been prescribed to patients within its various institutions, covering approximately two thirds of Indiana’s population. Within the structured data, the INPC has several ways to string data across years, institutions, between patients, and even with outside data sources.
Local Health Data Warehouses
The Regenstrief Data Core also has business agreements with Eskenazi Health and IU Health to access patient data for approved research purposes, allowing access to greater variety and depth of clinical data than that which is contributed to the INPC database.
Through collaboration, engagement, research, and technology, The Polis Center (Polis) builds capacity, creates actionable information, and develops knowledge platforms and place-based solutions that lead to healthier and more resilient communities.
Polis curates numerous spatially-enabled datasets about Indiana communities that are valuable for investigating community resilience and the social and environmental determinants of health, i.e., factors that influence health behaviors and outcomes. Polis collaborates with researchers and community partners on the application of place-based information for population health management, patient-centered decision support, community assessment and improvement planning, pre-disaster mitigation planning, and disaster management.
In addition to its large collection of geo-based community data elements, Polis develops knowledge platforms for the management, sharing, and use of data. It offers access to SAVI, a free resource that provides data about Central Indiana communities as well as tools to visualize and analyze the data. (IndyVitals.org)
Indiana Business Research Center (IBRC)
Since 1925, the IBRC has been collecting, organizing and finding meaning in the social and economic characteristics of our state. The center began providing computer access to its databases in the 1970s and has developed an award-winning interactive web service called STATS Indiana, the leading source for state economic and demographic data. It offers a variety of ways to obtain and present essential data for cities, counties, states and the nation. Additionally, IBRC offers data through several other collaborations:
- StatsAmerica provides a unique and useful set of economic development tools with support from the US Economic Development Administration. Features include state, county, town and neighborhood profiles; industry and occupation clusters; and the Innovation Index.
- Hoosiers by the Numbers is produced in collaboration with the Indiana Department of Workforce Development and provides access to data and analysis produced by the department.
- Indiana INdicators provides innovative health dashboards that give a good picture of overall health and quality of life in Indiana counties, as well as goals for the future.
- Indiana Gateway for Government Units provides taxpayers with information never before available and streamlines the data submission process for local government officials. Hundreds of local units of government, schools, state agencies, casino operators, and others submit financial and operational data, including: annual financial reports, employee compensation reports, debt issuances, local development agreements, TIF district summaries, school district collective bargaining reports, and more.
State of Indiana Management Performance Hub (MPH)
MPH is Indiana’s hub for data-driven innovation and collaboration, serving as a connector of entities and sectors to enable progress on important issues facing Hoosiers. MPH offers the state’s publicly available datasets in one convenient location as well as the ability to request custom datasets. Currently, MPH offers data related to K-12, higher education, and the workforce. Requests are considered based upon the data available and the level of granularity allowed to be shared under the law. Visit data.IN.gov for more information.
Healthcare Cost and Utilization Project (HCUP)
The Indiana State Department of Health makes public all available hospital discharge data from 1999-2016, primarily used to review costs related to hospitalization. Specific data elements available are hospital, payer, diagnosis code, total number of patients, total days of hospital stay, total charge and others.