Condition-specific data registries are unique tools for improving healthcare outcomes. These repositories combine data from EHRs and the health information exchange, maintained as research-ready data sets. Evidence generated from registries like these can streamline translational research and speed implementation by narrowing the scope of what does and does not work in clinical settings. Regenstrief data analysts are available to assist with access to and use of these registries and determine feasibility for establishing new ones.
COVID-19 RESEARCH DATA COMMONS (CORDACO)
The Covid-19 Research Data Commons (CoRDaCo) is an efficient, effective way of quickly generating datasets for Covid-19 related research. CoRDaCo integrates multiple sources of clinical and social determinants data into one central repository, which can be leveraged for many uses. Creating a curated collection of data elements specific to Covid-positive patients and stored in a structured way allows for rapid creation of study-specific data sets.
Additionally, creating this central repository allows for use of applications that will give researchers direct access to generate data sets.
CoRDaCo leverages Regenstrief’s unique access to clinical elements from a variety of sources, utilizing data from the health information exchange, state laboratory reporting, and direct access to the electronic health records of two health systems. Additionally, CoRDaCo includes variables from The POLIS Center‘s SAVI community information system.
CoRDaCo Patients by Race
CoRDaCo Patients by Gender
TRAUMATIC BRAIN INJURY
The Traumatic Brain Injury (TBI) Cohort consists of more than half a million unique individuals with ICD9 or ICD10 codes for a traumatic brain injury with the index event occurring from years 2004-2018.
TBI Patients by Race
TBI Patients by Gender